When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
Girl Rejected by 15 Families Is Adopted by Single Dad, Years Later He Finds Out She’s a Millionaire…
A man battling the grief of losing his family adopts a girl with Down syndrome and gives her a loving home. Nine years later, he gets a call from a stranger and finds out the girl he adopted is a millionaire.
It was a beautiful, sunny day, and birds were chirping merrily in the skies. Nothing seemed wrong with the world outside. But for 33-year-old Brian, it was the darkest day of his life.
Brian’s loving wife, Lyra, and his only daughter, Amy, were killed in a car accident that morning. He shuddered as he rushed to the police station for identification and saw their pale faces hidden beneath thin white covers. How could God be so cruel? How could he take his family away from him?
As they were buried, Brian felt like someone had drained out the blood in his body. He couldn’t take his eyes away from the fresh mounds of Earth beneath which his wife and daughter lay, and at one point, he wished he was the one there, not them.
After losing Lyra and Amy, Brian felt his life had lost meaning. “Brian, you can’t be stuck like that. You’re young, and you have a whole life ahead of you. The living should live on,” his mom told him one day.
“Mr. Hoffman,” said the lawyer. “Trust me. You’d like to come to my office for this. There is someone you’d like to meet.”
It had been five years since Brian lost his family, but for him, it still seemed like it was only yesterday when he’d seen his wife and daughter’s pale faces. How could he move on? How could he forget that the people he loved the most were no longer with him? It wasn’t easy for him.
One day, Brian returned from work and went about his tedious routine. He sat at his desk, checking reports and completing his office work like he always did. His work kept him occupied and distracted him from his sad thoughts.
He switched the browser tab to his Facebook account, and a post about a little girl with Down syndrome suddenly appeared. Brian would have missed it if it hadn’t been for the message on the post: “…Rejected by 15 families, and yearning for a loving home. Andrea is a lovely girl with special needs and wishes for a family.”
Brian sighed and stared at the post for a few minutes. He needed a family, and so did she. Life had been cruel to both of them in different ways, and perhaps this was God’s way of finally relieving him of pain.
Brian thought about the Facebook post all night, and he wondered if she should adopt the girl. As a single father, he knew the process would be difficult, but this girl really needed a loving home, and he knew he could give her that.
“All right then,” he told himself. “I’ll try.”
The next day, Brian called the number in the Facebook post and expressed his eagerness to adopt Andrea. The woman on the other end provided him with the contact information of the social worker in charge of Andrea’s case.
A few days later, Brian saw little Andrea for the first time, and his eyes welled up. She was a lovely little girl of six, dressed in a blue floral frock and staring at him with puzzled eyes.
Sadly, she was abandoned by her single mother because of her disability. “How sad,” Brian thought to himself as she entered the room.
“Hi, Andrea,” Brian told her gently. “I’m Brian. I’m here to become your parent. Would you like to have me as your dad?”
Andrea didn’t say anything, but she smiled and nodded at him. At that moment, Brian knew he would do anything to provide her with a loving home. And he did just that.
After the exhaustive documentation process, background verification, and parenting workshops, Brian was officially Andrea’s adoptive father and his life found new meaning. They were so happy with each other, so delighted. He was happy to become a father to a little girl again, and he couldn’t have wished for more.
They celebrated her birthdays together, and Brian’s parents loved Andrea too. He tried to be the best dad to her and ensured she never missed out on anything just because she was different from other children.
Brian didn’t even realize when Andrea turned 15 years old. Nine years passed so fast, but he felt as if he had brought his little girl home only yesterday. He was so happy with the turn his life had taken.
But a few months later, things started to get tough. Due to issues at work, Brian lost his job and had to hunt for a new one. He lived off his savings while searching for a job, which proved harder than he thought.
Eventually, things got to the point where he didn’t have enough money for basic necessities. He had to move to a smaller house and was struggling to make ends meet. But one day, help appeared out of nowhere.
Brian received a call from a man claiming to be Andrea’s mother’s lawyer.
“Yeah, so? What do you have to do with my child now?” Brian said angrily. “That woman abandoned my daughter right after birth, and you think I’d be willing to talk to you now?”
“Mr. Hoffman,” said the lawyer. “Trust me. You’d like to come to my office for this. As Andrea’s legal guardian, you will be receiving her mother’s million-dollar legacy on her behalf. And there is someone you should also meet. I’ll send you all the information following the call. I hope to see you this Friday,” he said and hung up.
Brian was understandably shocked. Why did Andrea’s mother leave her such a sizable inheritance if she wanted nothing to do with her child?
That Friday, Brian visited the lawyer’s office and met an old man there who turned out to be Andrea’s grandfather. He said he had no idea about his granddaughter until his daughter was on her deathbed, taking her last breath.
“Andrea,” she’d whispered, as she took his hand in hers. “Her name is Andrea…”
“I’ve missed out on so many years with my granddaughter,” he told Brian sadly. “I’d like to be there for her. I know you took her in legally, but I just want to be there for my grandchild. My daughter regretted abandoning her child in her final days… She was aware of her blunder, which is why she left her assets to her.”
Brian was more than happy to know Andrea had a family. In fact, he didn’t want to separate a granddaughter from her grandad.
Brian would soon take Andrea to her grandfather’s house regularly, so they could spend time together. And with the inheritance money, he paid off his debts and moved into a larger home while saving a considerable amount for Andrea’s future studies.
When he would visit Andrea’s mother’s grave sometimes, he felt a sense of relief in his heart. It made him believe she is content that her daughter had a good life and a loving home.
What can we learn from this story?
The ones who can give love always receive love. Brian was shattered after losing his family, but he still had a lot of love left in his heart. He gave that love to little Andrea, who returned it and became his new family.
You establish a family through love, not necessarily through blood. While Andrea’s biological mother abandoned her shortly after birth, Brian took her in and raised her with love.
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