One of the worse things is cancer, even more so when it’s concerning children.
Jonathan and Shelby thought that their daughter, Sophie, who is two years old, was suffering from allergies. She was finding it hard to breathe and her doctor thought it might be asthma. Unfortunately, it was soon going to be evident that it was much worse!
The little girl, Sophie was set to have an allergy test a few day later, but she didn’t get to take that test.
One night she stopped breathing…
For every parent it’s a worse case scenario, Her parents ran to call an ambulance and within minutes they were on their way to the hospital.
It was just at that moment that doctors finally confirmed that Sophie had a condition that was much worse than just asthma or allergies. She had developed cancer, a T-cell lymphoma.
Sophie has since then spent many months in hospital having chemotherapy, even though fighting it hard the cancer spread.
The treatment affected her ability to talk, walk, use her hands to eat, her tiny body is going through the preparations for a stem cell operation.
Shelby is keeping a constant watch over her daughter and is by her side constantly. So many times Shelby forgets to take care of herself, it’s just the only thought she has, to get Sophie better!
Jonathan and Shelby have created a Facebook page to record Sophie’s fight against the disease, they want friends and family alike to have an easy method to see updates on how Sophie is getting along. The page is called Sophie The Brave.
It’s not just family that follows the page, there are over 12,000 people following Sophie’s fight.
There is one post on the page that has especially been welcomed. Moms with sick children will also relate, very likely, to what Shelby’s said.
Shelby wrote:
“I see you. I sit on this couch all day long and, I see you. You try so hard to be unnoticed by me and my child. I see your face drop a little when she sees you and cries. You try so many ways to ease her fears and win her over. I see you hesitate to stick her or pull bandaids off. You say ‘No owies’ and ‘I’m sorry’ more times in one day than most people say ‘thank you’..”
“I see all of those rubber bracelets on your arms and wrapped around your stethoscope, each one for a child that you’ve cared for and loved. I see you stroke her little bald head and tuck her covers around her tightly. I see you holding the crying mom that got bad news.I see you trying to chart on the computer while holding the baby whose mom can’t-or won’t be at the hospital with her.”
“You put aside what’s happening in your life for 12 hours straight to care for very sick and something’s dying children. You go into each room with a smile no matter what’s happening in there. You see Sophie’s name on the schedule and come to check on us even when she isn’t your patient. You call the doctor, blood bank, and pharmacy as many times as necessary to get my child what she needs in a timely manner. You check on me as often as you check on her. You sit and listen to me ramble for 10 minutes even though your phone is buzzing and your to do list is a mile long.
“I see you. We all see you. No amount of snack baskets or cards can fully express how appreciated you are. You are Jesus to us every single day. Our children wouldn’t get what they need without you. Moms like me wouldn’t feel sane or heard without you. You save our babies and we couldn’t do this without you.”
Shelby got 26,000 likes on her post, its easy to see and understand why, all the amazing people at the hospital, the nurses, all deserve to be thanked and recognized for their great work.
Let’s all hope and pray that Sophie makes a fast recovery, and as it happens the family got some really great news, Sophie’s cancer is almost all gone!
Let’s also share Shelby’s words about the nursery and hospital staff so that more and more people can hear about the amazing work they do.
Parents were really surprised when their baby was born with a big smile on its face.
Ayla Summer Mucha startled her parents by beaming brightly when she was born in December 2021. Her parents fell in love with her right away, despite their first confusion due to an unusual illness that caused her smile to be permanent. Ayla is now well-known on social media, and her charming smile is adored by people everywhere.On December 30, 2021, Cristina Vercher and her husband Blaize Mucha were eager to finally see their newborn girl after nine months of waiting. However, unexpected news was delivered by the doctors during the C-section delivery.Due to bilateral macrostomia, Ayla Summer Mucha’s mouth did not form normally from birth.When a baby is growing inside its mother, the corners of the mouth sometimes don’t meet correctly, a condition known as a facial cleft. Just 14 cases similar to it have been documented in medical books due to its extreme rarity.Because the ultrasounds revealed no issues, Ayla’s parents were unaware of this until after she was born. They became really concerned when they noticed that she was speaking with her mouth agape. Even though Ayla was so small, the problem was evident, which startled and worried Ayla’s parents, who are now 23 and 22 respectively.”I had never met anyone born with a macrostomia, and neither Blaize nor I knew about this condition,” Adelaide’s Vercher remarked. Thus, it came as a huge surprise.Not just the parents expressed surprise.
A baby with bilateral macrostomia was beyond the capabilities of even the medical professionals.The fact that it took hours for a doctor to respond to our questions made it much more concerning. She added that the hospital was also ignorant of this uncommon ailment. “As a mother, all I could focus on was my mistakes.”However, medical professionals informed the anxious parents that there was nothing more they could have done. Cristina was concerned that she might have erred during her pregnancy or contributed to her daughter’s illness.She remarked, “I couldn’t stop wondering where I might have made a mistake as a mother.” They were convinced, nevertheless, that they had no influence over this problem and that they were not to blame following days of genetic testing and scans.The Mucha family concentrated on assisting Ayla in managing her illness, which limits her food and drink options, comfortably. Babies with this illness occasionally require surgery to become better.Ayla’s parents posted her story on social media so that people may learn more about it. Around 6.5 million users enjoyed Ayla’s adorable smile on TikTok. The amount of support that the Muchas received shocked them.”I just looked it up, and there are only 14 cases like hers that are known,” a commenter said. She is truly unique. Mom, you ought to feel proud.Regarding Ayla’s smile, another internet user stated, “She is gorgeous and just perfect the way she is.” Her smile made me smile as well.But nasty things about Ayla were said by several people online. But Ayla’s supporters swiftly came to her aid.”Your daughter is stunningly gorgeous. Never pay attention to such nasty folks. One individual remarked, “She’s like an angel.” Someone else posted, “Oh my gosh! You’re quite adorable! Pay no attention to their hurtful remarks. You’re simply too cute.”You’re a strong mom, and your daughter is beautiful,” commented another commenter. I apologize for exposing you to those hurtful remarks.Vercher said, “I think it’s important to be kind and accept everyone, no matter what,” to the hurtful remarks made about her child.If she and her child were in a similar circumstance, she hoped that people would treat them with the same respect. Vercher said that anyone could experience similar circumstances. She added that since you have no control over what other people say on social media, it can be a difficult place.Vercher ignored the criticism in favor of highlighting the encouragement and kind remarks. “We’re really proud of ourselves, so we won’t stop sharing our experiences and favorite memories,” she remarked.
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