Mom of Boy with Rare Condition Shares Their Life, People React Differently

Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.

At first, everything seemed normal.

Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.

For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.

Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.

Then the news of the diagnosis hit the parents, something no one could have anticipated.

As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.

Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.

Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.

In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.

His mother uses social media to spread awareness about his condition.

At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.

Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.

Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.

Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.

As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”

People in comments react differently.

Mostly people express support and empathy.

But some show a bit of skepticism.

  • Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
  • I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram

Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.

My Fiancée Lost Her Engagement Ring and Demanded That I Re-Propose, but the Whole Truth behind It Made Me Gasp

My Fiancée Lost Her Engagement Ring and Demanded That I Re-Propose, but the Whole Truth behind It Made Me Gasp

Jason’s meticulously planned engagement party took an unexpected turn when he revealed his fiancée’s deceitful act of pawning her engagement ring for a shopping spree. In front of friends and family, he exposed her betrayal and auctioned the ring for charity, reclaiming his dignity in a dramatic fashion.

Losing her engagement ring on that hike devastated Emily. She was a mess, and no amount of shopping therapy seemed to help. She bought a new purse and shoes, but I could still see the sadness in her eyes. It hurt me to see her like that, and I knew I had to do something.

A lost engagement ring | Source: Midjourney

A lost engagement ring | Source: Midjourney

Determined to make things right, I made a tough decision. My PlayStation had been my companion for years, but it was time to let it go. I decided to pawn it and use the money to buy a new ring for Emily. With a heavy heart, I drove to the pawn shop.

The shop was a small, cluttered place on a busy street. As I walked in, the bell above the door chimed. I took a deep breath and approached the counter. A middle-aged man with a friendly smile greeted me.

The owner of a pawn shop | Source: Midjourney

The owner of a pawn shop | Source: Midjourney

“Good afternoon. What can I do for you today?” he asked.

I placed my PlayStation on the counter. “I need to pawn this. I need the money to buy an engagement ring.”

He nodded, looking at me with sympathy. “I see. Let’s take a look.”

The pawn shop owner inspects a gamepad | Source: Midjourney

The pawn shop owner inspects a gamepad | Source: Midjourney

While he examined the PlayStation, my eyes wandered around the shop. And then I saw it. My heart skipped a beat. There, in the glass display case, was Emily’s engagement ring. I recognized it immediately—the intricate design, the tiny chip on the band. It was definitely hers.

“Excuse me,” I interrupted, pointing at the ring. “Where did you get that ring?”

Jason sees the ring | Source: Midjourney

Jason sees the ring | Source: Midjourney

The man glanced at the display case and then back at me. “Oh, that one? A young woman brought it in a few days ago. Said she needed the money for something urgent.”

My mind raced. Did someone steal Emily’s ring and pawn it here? But as the man continued to describe the woman, my heart sank. It was Emily.

Sad Jason | Source: Midjourney

Sad Jason | Source: Midjourney

Why would she pawn the ring and then ask me to buy a new one? Was she in trouble? My emotions swung wildly between confusion, betrayal, and anger. I needed answers.

“Can I see the ring?” I asked, my voice trembling.

Jason understands it was his ring | Source: Midjourney

Jason understands it was his ring | Source: Midjourney

The man handed it to me. Holding it in my hand, I felt a mix of nostalgia and heartbreak. I thanked him and promised to return with money to reclaim it. Leaving the pawn shop, I knew I had to confront Emily.

But a simple confrontation wasn’t enough. I wanted to teach her a lesson she’d never forget.

Jason tried to find a way confront Emily | Source: Midjourney

Jason tried to find a way confront Emily | Source: Midjourney

Back at home, I decided to play it cool. I acted like nothing had happened, going about our daily routines as usual. Meanwhile, I hatched a plan for the perfect revenge.

I began by planning a lavish surprise engagement party. I invited all our closest friends and family. I told everyone it was going to be a special night where I would re-propose to Emily with a new ring, explaining how we had lost the original one on a hike. Everyone was thrilled and eagerly anticipated the event.

Jason invites everyone to a party | Source: Midjourney

Jason invites everyone to a party | Source: Midjourney

I was careful with the details, making sure everything was perfect. I wanted this to be a night Emily would never forget. I wanted her to feel the same shock and confusion I had felt at the pawn shop. It was a cruel plan, but in my anger, it felt justified.

The day of the party arrived, and everything was set. The house was decorated beautifully, and the guests started arriving. Emily was excited, thinking it was just a regular party. She had no idea what was coming.

Emily excited for her party | Source: Midjourney

Emily excited for her party | Source: Midjourney

As I looked around at our friends and family, all there to witness what they thought would be a magical moment, I felt a pang of guilt. But I pushed it aside. This was for Emily. She needed to understand the impact of her actions.

The moment arrived. I got down on one knee, holding the new ring in my hand. Emily’s eyes sparkled with surprise and joy. But I wasn’t done yet. The real surprise was yet to come.

Jason executes his plan | Source: Midjourney

Jason executes his plan | Source: Midjourney

As everyone gathered around, I took the stage with a microphone in hand. “Thank you all for coming,” I began, my voice steady and confident. “Tonight is a very special night. I want to share something important with all of you.”

I turned to Emily, who was smiling broadly, expecting a heartfelt proposal. “Six months ago, I proposed to you with a ring that symbolized my love and commitment. Recently, we thought that ring was lost during a hike. But tonight, I have a different story to tell.”

The ring in a pawn shop | Source: Midjourney

The ring in a pawn shop | Source: Midjourney

The room fell silent, the suspense building.

“I went to the pawn shop to sell my PlayStation so I could buy a new ring and re-propose. But to my shock, I found our original ring there. The pawn shop owner told me it was brought in by someone who needed money for something urgent.”

Checked and frightened Emily | Source: Midjourney

Checked and frightened Emily | Source: Midjourney

I paused, letting the words sink in. Emily’s smile faltered, confusion and fear flickering in her eyes.

“And that someone,” I continued, “was you.”

Gasps and murmurs spread through the crowd. Emily’s face turned pale.

Emily understands her secret is out | Source: Midjourney

Emily understands her secret is out | Source: Midjourney

“You pawned our engagement ring for a handbag and some shoes, then demanded I buy you a new one and re-propose. You didn’t think I would find out, did you?”

Her eyes widened, tears welling up, but I pressed on.

“So, tonight, instead of a re-proposal, I have something else planned.” I reached into my pocket and pulled out the engagement ring. “This ring is a symbol of trust and love. And it deserves to be with someone who truly understands its value.”

Jason auctions his ring | Source: Midjourney

Jason auctions his ring | Source: Midjourney

I turned to the crowd. “I’ve decided to auction this ring tonight, right here. All proceeds will go to a charity that supports honesty and integrity.”

The room buzzed with shock and excitement as I handed the microphone to the auctioneer I had secretly hired for the night. Emily stood frozen, humiliated and speechless.

The auctioneer | Source: Midjourney

The auctioneer | Source: Midjourney

As the auctioneer began taking bids, I watched with satisfaction. The ring sold quickly, raising a substantial amount for charity. The room erupted in applause, and I felt a weight lift off my shoulders.

Jason talks to his friend | Source: Midjourney

Jason talks to his friend | Source: Midjourney

After the auction, friends and family approached me with mixed reactions. Some were shocked, others were impressed by my bold move. My best friend, Mark, patted me on the back.

“Man, that was intense,” he said. “I can’t believe you pulled that off.”

I shrugged, trying to play it cool. “Had to do something. Couldn’t let it slide.”

Emily tries to win Jason back | Source: Midjourney

Emily tries to win Jason back | Source: Midjourney

Emily, still standing off to the side, finally found her voice. She approached me, tears streaming down her face.

“Jason, I… I can’t believe you did this. Why didn’t you just talk to me?” she pleaded.

I looked at her, feeling a pang of guilt mixed with the lingering anger. “You lied to me, Emily. You pawned the ring and didn’t even think to tell me the truth. How could I trust you after that?”

Jason doesn't want anything to do with Emily | Source: Midjourney

Jason doesn’t want anything to do with Emily | Source: Midjourney

She sobbed, covering her face with her hands. “I was desperate. I made a mistake. I’m so sorry.”

I sighed, the reality of the situation settling in. “I needed you to understand the gravity of what you did. Trust isn’t something you can just throw away and expect to get back.”

Jason sits in an emptying restaurant | Source: Midjourney

Jason sits in an emptying restaurant | Source: Midjourney

The room began to empty as guests slowly left, whispering among themselves about the night’s events. I stood there, feeling a mix of relief and sorrow. It wasn’t the ending I had envisioned for us, but it was the one we had come to.

As the last guests left, I walked over to the charity representative to hand over the proceeds from the auction. “Here you go. I hope this helps,” I said, trying to focus on the positive outcome of the night.

Charity associate | Source: Midjourney

Charity associate | Source: Midjourney

“Thank you, Jason. This will make a big difference,” she replied, taking the envelope with a warm smile.

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