How Tessa Evans is Turning a Rare Condition into a Source of Inspiration and Change

The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.

Understanding a Rare Genetic Condition

Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.

A Trailblazing Journey

Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.

Groundbreaking Treatments

At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.

Challenges Beyond Appearance

Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.

Inspiring Change and Progress

Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.

A Legacy of Resilience

Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.

Please SHARE this story to inspire others and spread awareness about this extraordinary journey.

Flight Attendant Forced Me to Kneel on the Plane While Pregnant – Her Reason Left Me in Shock

Kayla, grieving the loss of her grandmother, is about to return home after the funeral. But when she boards her flight, she has no idea about the nightmare that awaits her. In a case of mistaken identity, Kayla has no choice but to rely on her wits and quick thinking to get her out of the hot water she has landed in.

After a few long days of grieving, I was ready to collapse into my own bed. I was six months pregnant and emotionally drained from my grandmother’s funeral.


People at a funeral | Source: Pexels

The funeral had been tough, but it was a poignant farewell to a woman who had been my rock throughout my life.

“Are you sure you want to leave today?” my mother asked as I packed my suitcase. “You can wait a few days if you need to just sit with this loss.”

I smiled at her sadly.


A person packing a suitcase | Source: Pexels

“I know,” I said. “But I need to get back to work and back to Colin. You know my husband barely manages without me.”

“I suppose it’s a good idea for you to be in your comfort zone,” she said. “But Dad and I have decided that we’ll stay until the end of the week just to sort Gran’s house out and finalize anything that needs to be done. I know that Dad cannot wait to get home.”

“I just wish that Gran would have been around to see the baby,” I said, rubbing my hand along my belly. “That’s what I’ve wanted all along.”


A woman holding her stomach | Source: Unsplash

“I know, honey,” my mother said. “I wish that you and Gran could have had that moment, but it’s okay, darling. At least you were here in the end when Gran needed you the most.”

Now, I was navigating the long lines at the airport. I had hated flying, but it was much easier to fly home than drive. I couldn’t manage spending twelve hours in a car with my bladder fighting me.


People at an airport | Source: Unsplash

But finally, I made it onto the plane, ready for the journey back home to my husband.

“I’ll take that, ma’am,” a flight attendant told me, reaching out for my bag.

“Thank you,” I said, settling into my seat, my body aching for rest.


A pregnant woman sitting in an airplane | Source: Midjourney

“Oh, I hate flying,” the woman next to me said. “It’s the worst. But I hate driving too. I should have just stayed home.”

I almost laughed because I agreed completely. I hated the turbulence that came with flying. It made me feel uneasy and anxious, as though I was absolutely losing control with each jolt.

But still, as I sat back, ready for the flight to take off and take me home, I couldn’t shake the feeling that someone was staring at me.


A man sitting in an airplane | Source: Midjourney

Turning around, I noticed a man sitting a few rows behind, intently watching me. His gaze was unsettling, but I dismissed him as one of those people who judged a pregnant woman for traveling.

Soon after, the hum of the engines became a soothing background noise as the plane began its ascent.

“Finally,” the woman beside me said. “Let’s just get home.”

Little did I know that a nightmare was about to unfold.

Ten minutes after we were airborne, a flight attendant approached me, her gaze hard.

“Excuse me, ma’am. Could you please come with me?” she asked, her perfume taking over my nose.

I had no intention of waking up and walking anywhere, but her authoritative tone left no room for argument, and with a deep sigh, I unbuckled my seat and followed her to the clearing just off the bathroom.

Immediately, her demeanor changed.

“You need to get on your knees immediately!” she commanded, nodding to someone that I couldn’t see.

“What? Why? What happened?” I exclaimed, completely shocked.

“Now,” she said simply.

I was shocked and confused, but something in her voice made me comply. As I knelt, I couldn’t understand what was going on. Nothing felt right. I hadn’t done anything wrong.

Just then, the man who had been staring at me earlier entered.

“Where is the golden necklace you stole?” he demanded, his voice threatening.

“What are you talking about?” I asked. “I didn’t steal anything! I am just returning from my grandmother’s funeral!”

He made a clucking sound with his tongue and produced a set of photographs and documents.

“This is you at the museum two days before the exhibit was moved to the hotel. This is you at the hotel foyer where the necklace went missing. We tracked you up to this plane after you ran away from the hotel.”

I looked at the pictures, and they were hazy. But they did bear a striking resemblance to me, though there were clear differences.

“Look,” I said suddenly. “The woman in these photos has a tattoo or scar or something on her wrist. Look! I don’t have anything like that!”

The man examined my wrists, his icy hands pulling roughly.

“See? No tattoos. No scars. Nothing. You have the wrong person!” I insisted. “And I’m pregnant! The woman in the photos is not!”

I felt a sudden wave of fear for my baby. In the heat of the moment, my baby lay there silently.

“But that could be a disguise,” he replied, not entirely convinced.

I thought about whether the police would be waiting for me at the airport. And whether I could get away from this. I just wanted to get home to Colin.

It was as if thinking about my husband had summoned the baby to wake up.

A sudden kick in my stomach made me act impulsively. Without thinking, I took the man’s hand and placed it on my belly.

“No, you can’t fake this,” I said.

He sighed, looking visibly relieved but also very embarrassed.

“I’m so sorry. You look very much like her. I was convinced that we were on the right track. I have to wait until we get back on the ground to actually deal with this.”

“Look, I get it,” I said. “But I’m not her. I’m just trying to get home,” I said, feeling a bit calmer, while I tried to get back onto my feet.

Little did we know that it was time for part two of the nightmare.

Suddenly, the flight attendant pulled out a gun.

“Enough! Both of you, hands behind your backs!”

She reached into her pocket and pulled out zip ties, tying the man’s hands first with her back to me.

“You’re not as foolish as you look,” she said to him. “You were right about tracking me to the plane. But you had the wrong person in mind.”

Another surge of fear for my baby made me act. With her standing with her back to me, I saw an opportunity and kicked her as hard as I could.

She stumbled and fell, dropping the gun. She had been distracted talking to him that she didn’t finish zip tying the man’s hands yet, so he tackled her.

As he did, we caught a glimpse of the gold necklace hanging around her neck.

“She’s the real thief,” he said, securing her. “She’s been posing as different people to avoid capture. I have no idea how she managed to board this flight as an attendant.”

“You are so brave for doing what you did. Thank you for getting to her before she tied me,” he said.

“I was just afraid for my baby,” I said, sighing. “I acted on instinct.”

The rest of the flight was a blur of apologies from the man and explanations to the crew and authorities.

“I’m Detective Connor,” he said, shaking my hand after.

The woman was arrested upon landing, with about fifteen police officers standing at the gate, just waiting.

“I am truly sorry for what you’ve been through,” Connor said.

“Just explain to me what happened,” I replied, needing closure before heading out to find my husband.

“We’ve been tracking this woman for months. She’s been stealing valuable items and using various disguises to evade capture. I received a tip that she would be on this flight. When I saw you, and your hair, I just thought…” he trailed off, clearly remorseful.

“You thought I was her,” I finished for him. “Well, I’m not. And now you know.”

“Yes, and I’m very sorry for the mistake, Kayla. I hope you can forgive me.”

Despite the ordeal, I felt a strange sense of relief.

As I walked through the doors and saw my husband standing there with yellow tulips and a wide smile on his face, I instantly felt at peace.

“Welcome home,” he said, pulling me into a hug. “I’m so glad you’re back.”

We drove home in silence, just enjoying being in each other’s presence again. But when we got home, I sat down with Colin and told him everything that had happened on the flight.

“Are you okay?” he asked me, his eyes wide. “Are you shaken? Should we take you to a doctor to make sure everything is okay?”

“No,” I replied. “I’m absolutely fine, I just wanted to come back home to you.”

My husband put his hands on my stomach and smiled at me.

“I’m glad you’re home,” he said again, kissing my stomach.

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