In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
25 Years Later They Laugh At Critics Who Said Marriage Wouldn’t Last
There are many people who get married despite the fact that critics may doubt their ability to stay married for the long term. This often happens when we get married quickly or perhaps we are young and people don’t think we are yet responsible enough for the bond.
In 1995, there was a young couple who also were doubted but they ended up getting married and they stayed married for 25 years. They also were the first couple with Down syndrome in the UK to become husband and wife.
These days, we hear about people who have Down syndrome getting married on a regular basis. At that time, however, it was unheard of and it was the first time in the world that a couple with Down syndrome said I do.
Just like any other disability, however, those with Down syndrome have the ability to beat the odds, and certainly, that is what Tommy and Maryanne Pilling did. In fact, they are an inspiration to many who wonder if they have what it takes.
Maryanne was born in 1971. Her mother, Linda Martin, provided her with a loving atmosphere at home and she also had a sister who loved her as well. There were still times, however, when she struggled in life and she was even rejected by her father.
Since she was raised in a loving household, however, she grew up to be a very loving woman. It was easy to see in her lively personality.
Tommy was born in 1958 and was an only child. When he was 12 years old, he became an orphan and he grew up in a care home in Essex. He did have delayed development because of a lack of a support system, and he didn’t care much for his physical appearance.
When the two of them met in 1990, they were working in a kitchen in a training home for disabled individuals. He was 32 and she was 19 at the time.
It was easy to see how Maryanne felt about Tommy because she would absolutely light up when she spoke about him. They shared a number of common interests, such as music, cooking, movies, and doing craftwork.
Tommy also loved Elvis Pressley and the two of them would dance together on a regular basis. He would also let her know how much he loved her, and eventually, the family got accustomed to having him around.
18 months after they started dating, he proposed to her and asked her mother for permission to marry her daughter. The mother didn’t hesitate, she gave her blessings right away.
Other people, however, were not quite so positive about the idea of the two of them getting married. Some said that she wasn’t ready for it and some even asked about their sex life.
Despite the fact that they were criticized openly, they got married in 1995. 250 people came to the wedding, which was a fairytale for them.
They lived together with her family for seven years before moving into their own apartment next door. Her sister also moved along with them.
They have a very strong bond because he listens carefully when she speaks. There is never any type of hidden agenda and they love each other with their whole hearts.
Unfortunately, Tommy was hospitalized in 2020 after he was diagnosed with Alzheimer’s and then got COVID. Due to his declining health, he passed away. That was on January 1, 2021.
When the news was broken to her, she seemed to understand but still was a little confused about the situation. We are just glad that they had almost 30 years together, and they loved each other till the end.
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