In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
Mia Robertson is visibly emotional, unable to contain her tears. “We will all miss him so much…” Dive into the comments for more insights.
Mia Robertson, the youngest child of Duck Dynasty members Jake and Missy Robertson, was born with cleft lip and palate, a birth defect characterized by an opening in the top lip that may also affect the gums.
Approximately one in every 1,600 newborns born in the United States has a cleft lip and cleft palate, according to the U.S. Centers for Disease Control and Prevention.
Sweet Mia, now eighteen, has had to endure 13 operations due to her ailment; the fourteenth one was just completed a short while ago. The family sincerely hopes that this will be Mia’s final procedure before her issue is resolved.
The young child stays upbeat through each surgery. Above all, she aspires to be an encouragement to other young children who share her condition at birth. Mia started the Mia Moo Fund on her own initiative and with the support of her family to help ensure that every child has a smile on their face.
Missy Robertson told Christian Post, “One of the Mia Moo Fund’s functions is to spread awareness of the cleft lip and palate journey.””The other one is to assist in providing medical funds for the families and parents who are currently residing in America.”
Jase Robertson provided an update on Mia’s status and mentioned that his daughter is healing nicely on his podcast, Unashamed.
“She’s doing fantastic. He declared, “She’s turned a corner,” and went on, “Everything seems great, seems to be fine.”
The devoted father informed his listeners on his podcast, “Surgery went a little longer than expected, but she is home and recovering.” “We appreciate your prayers for her and our family. She truly is a champion!
Prior to the procedure, Missy discussed her daughter’s health and mentioned that she had been questioned frequently about how many procedures Mia will require going forward. “We simply don’t know is the only response that is ever given,” Missy stated. She continued by saying that they look to God for support. “Since turning eighteen, she has assumed the initiative in all conversations and medical paperwork. It’s been a bit peculiar,” Missy penned. However, it serves as yet another reminder to rely on the Lord and recognize that I am not in charge.
In addition, Mia wishes to be at “the finish line.”
“Hopefully this will be the last time I see my physicians like this! We’ve come to the end of the journey, brave Mia remarked.
As they welcome a child whose mother is unfit to care for them into their hearts and home, the Robertson family has also been getting ready for a new member.
We hope Mia heals quickly.
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