Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Recent research has shown that kids need their grandparents more than we realize – Here is why
Recent research has shown that grandparents can have a profound impact on their grandchiIdren’s lives. By spending time with their grandchildren, grandparents can offer valuable support and guidance, especially in today’s complex world.
Grandparents possess a wealth of knowledge and experience, having navigated difficuIt times before, and they know how to handle various situations.
Studies have found that chiIdren who have active grandparents in their lives are generally happier and healthier than those who don’t.
There are many reasons for this, including the fact that grandparents can provide valuable life lessons and share their wisdom with their grandchildren. Additionally, grandparents are often great sources of humor and can bring joy and laughter to their grandchildren’s Iives. They can also be reliable and trustworthy babysitters, which is a great help for new parents.
Studies show kids need their grandparents more than we realize
1. Grandparents foster happiness.
A new study published in The GerontoIogist by Sara Moorman and Jeffrey Stokes confirmed that unity between grandparents and adult grandchildren has a significant impact. Their investigation revealed that higher levels of interpersonaI affinity between these two groups result in reduced depression symptoms for both.
2. Older relatives may provide a sympathetic ear to children.
Grandparents can serve as an additional outlet for children to express their emotions when they are upset with their parents.
While kids may be skilled at finding reasons to cry or complain, a caring grandmother’s ear can make a significant difference. Since children sometimes ignore their parents’ advice, grandparents may be better equipped to provide guidance and feedback that the children will truIy take to heart.
3. They serve as a reminder of our family heritage.
Grandparents are often an important link to our past and family history, which are integral parts of our identity. Through sharing stories of their childhood and our ancestors, they help us gain a deeper understanding of ourseIves and our heritage, creating a stronger sense of connection to our past.
Leave a Reply