Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
15 Pics That Prove Every Second With Your Loved Ones Is a Treasure to Keep
Reuniting with loved ones, helping those we care about, or a simple photoshoot with our kids and pets can make even a few minutes feel magical. All the better if we take photos of those moments. This way we can be reminded of them and ignite a warm spark inside of us, even if we feel down.
We at <strong>Bright Side have a soft spot for family and friends and we just can’t resist sharing our latest compilation of special moments that people shared on the internet.
1. “My son teaching his little sister how to walk from his wheelchair.”
2. “My husband rooting for our daughter is the energy I need this week.”
3. “Today we celebrated one year of beating a tumor. My wife made me a cake! Yea, my son is trying to steal it.”
4. “Surprised my friend by bringing him to a zoo where he got to pet his favorite animal, a sloth. His face says it all.”
5. “A ‘photoshoot’ my husband did while I was at work. If this doesn’t make you smile, I don’t know what will.”
6. “6 months meets 96 years — my Nana held her first great-granddaughter for the first time ever today!”
7. “Family moment 30 years ago with my mom and grandpa.”
8. “It took me nearly 26 years to find my father and his family. This is my newborn daughter and my uncle (my father’s brother).”
9. “I met my father for the first time in my (now) 29 years. We decided to have a ‘1st birthday’ on my 29th birthday.”
10. “I was a donor to my sister’s girlfriend and I’m now a proud uncle to my donor child.”
11. “My 96-year-old great-grandma with my kids and I. So thankful she’s in our lives!”
12. “Our flight got canceled for my birthday trip, and I missed the fancy pedicure we had booked. My husband surprised me the next day.”
13. “Met my internet best friend of 7 years for the first time!”
14. “My friend giving the neighborhood kids a huge box of chalk.”
15. “My daughter and I vs My granddaughter and I”
Which one touched your heart the most? Do you have a story with your loved one that you would like to share?
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