Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
MEGHAN MARKLE’S ORCHARD NAME DRAMA: MAJOR REBRANDING DECISION AFTER CLASH
Meghan Markle is thinking about a new name for her lifestyle brand, American Riviera Orchard (ARO), in case her current name doesn’t get approved, according to a source.
The U.S. Patent and Trademark Office recently rejected her application to use the ARO name, which has caused some confusion for her team.
The source mentioned that Meghan’s team might need to find a backup name, similar to what Kim Kardashian did when she had to change her shapewear brand name from Kimono to Skims due to cultural issues.
“The team is working on alternative names just in case,” the source said. “They’re a bit stressed but not too worried because Kim Kardashian also had to rebrand and it turned out fine.”
Changing the name now would be expensive because of all the branding work already done, but it’s not considered a disaster.
In March, Meghan Markle introduced her new lifestyle brand on social media and had filed for a trademark for the name American Riviera Orchard in February.
Her company aims to sell various home goods like cookbooks and tableware, as well as food and drink products such as jams and vegetable spreads. They are also considering adding a rose wine to their product line.
However, the trademark application was recently rejected. The U.S. Patent and Trademark Office (USPTO) said that “American Riviera” is a common nickname for the Santa Barbara, California area, which makes the name too generic and hard to trademark. The USPTO’s decision was announced on August 31.
The American Riviera refers to the California area, including Montecito, where Meghan Markle lives with Prince Harry and their children, Prince Archie, who is five, and Princess Lilibet, who is three.
Another source mentioned that trademark disputes are common in the U.S. and can usually be resolved. “It looks like American Riviera Orchard has received a few routine office actions, which is normal when filing for trademarks,” the source said.
The Sussexes have not yet commented on the situation.
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