Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
The World’s Hairiest Girl Is Now Grown Up, Happily Married and Rocks Her New Style After Shaving
A girl, once labeled “wolf girl” and “monkey face” by her peers, knew that her condition wouldn’t stop her from finding happiness. Eventually, she discovered the love of her life, and her story reveals the profound impact it had on her life.
Supatra “Natty” Sasuphan, once dubbed the world’s hairiest girl, faced ridicule and fear from her classmates due to her unique appearance.
On August 5, 1999, something important happened in Supatra’s family. Usually, when a new baby is born, parents feel really happy and excited. That’s how Supatra’s mom and dad, Sompon and Samrerng, felt when she was born.
But their happiness was mixed with surprise, fear, and disbelief because the doctor told them their baby had a lot of hair. At first, they thought it was normal, but when they saw her in the incubator, they were shocked by how much hair she had. Supatra’s hair covered almost her whole body, and even the doctors in Thailand had never seen someone like her.
Later on, doctors figured out that Natty had a very rare skin disease called Ambras syndrome. This condition is so uncommon that there have only been 50 cases like hers documented in the world since a long time ago.
Ambras syndrome causes excess body hair growth, sparing only the palms, soles, and mouth interior, likely due to a sudden DNA change.
When Natty was born, and her mom wanted to leave the hospital, the doctors didn’t want to let her go because they were worried she might leave her child behind. Sompon told the doctor that she would never abandon her child, no matter what. She said, “We are lucky that she was born into our family.”
Natty grew up in a loving family, but not everyone was understanding of her condition, and she had to deal with some unkindness from strangers and peers.
As Natty grew up, her face remained hidden behind thick hair due to her incurable Ambras syndrome. Regular methods like laser removal couldn’t slow down her hair growth. At school, she faced ridicule because of her unique appearance. Kids called her names like “wolf girl” and “monkey face.”
Natty, however, didn’t understand why they teased her, as she considered herself a normal girl with just a bit more hair. She stated, “It’s the way I am.”
Natty’s teacher, Kuljira Posaeng, revealed that other kids were initially scared of Natty’s appearance, making her early school days difficult. Over time, though, Natty proved she was just like any other student. Teachers described her as hardworking with good grades, and she eventually became one of the most popular kids at school.
Natty’s teachers said she was a lively girl who loved to sing, dance, and act. Her parents treated her just like any other kid, and they never made her feel like she was less important. They took her everywhere and weren’t embarrassed that she looked different from other children.
Later on, Natty found her love.
Natty has come to terms with her condition, understanding that there’s no cure for it. She decided to keep her body hair the way it naturally grew from the time she was born, only shaving her face when she became a teenager. As she grew older, her self-esteem and self-image became more important to her, and she also found love.
She shared: “It began from friendship, then we became a couple.” Their conversations brought her happiness, and being together was comfortable, with a love she didn’t anticipate: “It was a kind of love that I didn’t expect would happen to me.”
Natty later married her boyfriend, calling him “the love of my life.”
She also posted pictures with her lover, showing her face without facial hair. Some people thought she might have been cured, but her dad explained that she had chosen to shave her facial hair to reveal her new look. Now, her eyes, face, mouth, lips, and cheeks are visible, with only her forehead covered by her head’s hair.
Natty, who has found love and happiness, is determined to lead a positive life and continue making a beautiful impact on society. She believes that everyone is beautiful and unique in their own way, and she wants to inspire others to embrace their individuality and radiate their inner beauty.
Before you go, be sure to check out another article where a woman shares her story to emphasize that body hair shouldn’t be criticized, highlighting the importance of self-acceptance and embracing one’s uniqueness.
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