Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
5-Year-Old Boy Survives Vicious Dog Attack, Faces Cruel Bullying Over His Scars
This story is a sobering reminder of the resilience of the human spirit and the long road society has to travel toward kindness and acceptance. It is about a little boy who endured a devastating attack by two Rottweilers and survived, only to face cruel judgment from others due to his disfigured appearance.
Ryder Wells was just 21 months old when the unthinkable happened. During Thanksgiving of 2015, Ryder and his mother, Brittany, were visiting family friends. Brittany recounted the horrific incident:
“We were eating breakfast, and Ryder was moving back and forth between his toys and coming back for bacon. Then, he disappeared. I looked out of the window, and he was face down in the garden.”
She continued, “He had pajamas on, but they’d been completely ripped off except for a sleeve. When we picked him up and rolled him over, his face was just gone.
“The dogs had been around him before, and they’d been fine, so I don’t know what happened. The doctors said they would do what they could, but we weren’t expecting him to make it. They told us it’s a miracle he’s still here because he was so small, and the injuries were so severe. They thought the dogs had bitten so far into his skull that he would be paralyzed.”
Ryder’s injuries were catastrophic: he lost his entire right cheek, more than half of his lip, his teeth were crushed, his right lung was punctured, and his arm was broken. He was airlifted to the hospital, where he underwent over 14 hours of surgery. For Brittany, it was an unimaginable ordeal filled with anxiety and uncertainty.
Despite the severity of his injuries, Ryder’s spirit proved unbreakable. He survived the surgeries but was left with a permanently disfigured face. Over the years, he has undergone more than 50 facial reconstruction surgeries, with more to come in the future.
However, Ryder’s battle is not just physical. He faces the harsh reality of societal judgment. Brittany shared:
“He knows people are talking about him, but he doesn’t say much. He wears glasses and a cap and sometimes hangs his head to hide his face. I try to deal with it in a way that doesn’t affect him too much. I tell him every day that he’s beautiful, that different is beautiful, and it’s okay to be different.
“But I’m absolutely terrified about when he goes to school. There are always going to be a few kids who aren’t kind. When he started kindergarten, the kids learned about Ryder before they met him so they wouldn’t be as shocked. You always want your kid to be accepted and to fit in. Just because he’s different doesn’t make him any less of a person.”
Despite the challenges, Ryder has found a supportive community. Brittany expressed gratitude for the kindness they’ve encountered:
“He has a great group of friends, and people in town know him now, which boosts his confidence. He’s been amazing in how he’s adapted after everything he’s been through.”
Now five years old, Ryder’s journey is far from over. His family has started a GoFundMe campaign to support his future surgeries and treatments. Ryder’s story is a testament to his incredible resilience and a call for greater kindness and empathy in the world. We wish Ryder a life filled with love, acceptance, and opportunities to thrive despite the challenges he has faced.
Leave a Reply