Emiliana Rodriguez’s childhood memories are a blend of joy and sorrow, intertwined with the haunting specter of a silent killer lurking in the darkness. Growing up in Bolivia, she vividly remembers evenings spent watching her friends play soccer under the moonlit sky. But one fateful night, the game was abruptly halted by the tragic passing of a player, a victim of the insidious disease known as Chagas.
For Rodriguez, the incident cast a long shadow of fear over the night. In the folklore of her upbringing, Chagas was depicted as a monstrous presence that emerged under the cover of darkness, claiming lives without warning. This narrative became all too real when she learned that her friend had succumbed to this silent and silenced disease, one of the thousands who perish annually from its grasp.
Now, at 42 years old and living in Barcelona for over two decades, Rodriguez still grapples with the specter of Chagas that haunts her past. “The terror would grip me at night”, she confides. “There were times when sleep eluded me, fearing that I might never wake up again.”
Her own confrontation with the disease came to light eight years ago, during her first pregnancy. The revelation of her status as a carrier sent shockwaves through her, evoking memories of her childhood trauma. “I felt paralyzed with fear”, she recalls. “The thought of what might happen to my unborn child kept me awake at night.”
Yet, despite the looming threat, Rodriguez embarked on a journey of treatment to safeguard her child from the same fate. Thanks to medical intervention, her daughter emerged unscathed, spared from the clutches of the silent killer that had haunted her family’s history.
Rodriguez’s story is not unique. Across the globe, individuals like Elvira Idalia Hernández Cuevas of Mexico find themselves thrust into the unfamiliar terrain of Chagas disease. For Idalia, the journey began with a routine act of altruism, donating blood. Little did she know that this act would expose her to a hidden danger lurking within her own community.
“When I first heard the diagnosis, I was terrified”, Idalia recounts. “I had never even heard of Chagas before, let alone imagined that I could be its victim.”
Her experience echoes a broader reality, one where awareness of Chagas remains dangerously low, even in regions where the disease exacts its heaviest toll. Originating in the Americas, Chagas has since spread its reach to other continents, ensnaring millions in its silent grip.
In the face of this silent epidemic, efforts to combat Chagas are hindered by a lack of awareness and resources. Outdated treatments offer little solace to those afflicted, with medications often proving toxic and ineffective, particularly for newborns.
Yet, amidst the darkness, there are glimmers of hope. Champions like Emiliana Rodriguez and Elvira Idalia Hernández Cuevas are raising their voices to break the silence surrounding Chagas. Through advocacy and awareness campaigns, they seek to shine a light on this neglected disease, urging communities to confront the monster lurking in their midst.
As the world grapples with the challenge of eradicating Chagas by 2030, the road ahead remains daunting. But with each voice raised in solidarity, the hope for a future free from the shackles of Chagas grows stronger.
In the battle against this silent killer, knowledge is our most potent weapon. By arming ourselves with awareness and understanding, we can confront Chagas head-on, ensuring that no more lives are claimed by the darkness.
The fascinating and tragic story of Mary Ann Bevan
The story of Mary Ann Bevan, who was considered ‘The ugliest woman in the world,’ starts in the 19th century, a dark period of the American culture when ‘freak shows,’ traveling circuses showing people with certain deformities and disabilities, were at the peak of their popularity.
Today, it is highly unacceptable to treat people with disabilities with disrespect, but back in the day, no one believed it was morally wrong to dub them freaks.
Mary Ann Bevan was born on December 20, 1874, in Plaistow, East London, United Kingdom. She grew up to become a nurse and was respected by the society. On top of that, she was a very attractive woman who was offered many possibilities.
In 1902, Mary met the love of her life, a man named Thomas Bevan. The two married and welcomed four children together, but their happiness didn’t last long. After 14 years, Thomas passed away, leaving Mary heartbroken.
Her life became difficult as she was left to take care and provide for her children all by herself.
Unfortunately, around the time she turned 32, Mary started experiencing strange symptoms. Her face started changing gradually and she didn’t know what was happening or what caused that change which impacted her both psychologically and financially. Mary’s bones grew big, and her face became deformed. As a result, she lost her job and was unable to provide for her children any longer.
Back in the day, no one could diagnose her, but this poor woman suffered from acromegaly, a hormonal disorder that develops when the pituitary gland produces too much growth hormone during adulthood, when a change in height doesn’t occur. Instead, the increase in bone size is limited to the bones of the hands, feet and face.
Today, a lot more is knows about this condition and there are ways to keep it under control, which wasn’t the case during the time Mary lived.
Crushed, heartbroken, and poor, this woman saw an ad one day which read, “Wanted: Ugliest woman. Nothing repulsive, maimed or disfigured. Good pay guaranteed, and long engagement for successful applicant. Send recent photograph.”
No matter how awful she felt about this ‘job,’ she saw no way out of her situation. She simply needed to do anything in order to feed her children. Above all, she was a mother.
Mary answered the ad and she was soon contacted by the circus’ agent, a man named Claude Bartram, who later shared Mary’s story.
“She was not repulsive at all. She had the kind of face one usually finds in a giant, a powerful, masculine jaw, prominent cheek-bones, nose and forehead, but she was unblemished, healthy and strong. She told me she did not like the idea of placing herself on exhibition, she was shy and did not want to be separated from her children,” Bartram said, according to Daily Star.
“I told her she would earn £10 per week for a year, travelling expenses and all the money from the sale of picture postcards of herself, so she could provide for the education of her children.”
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In no time, magazines were filled with Mary Ann’s photos and everyone recognized her as ‘the ugliest woman on Earth.’
Her popularity brought her to the Dreamland Circus in Coney Island, New York, one of the most famous circuses there were. Mary Ann became an attraction, but then a doctor named Harvey Cushing, a leading neurosurgeon, spotted her and knew there was more behind ger huge face that he wanted to explore thoroughly.
“This unfortunate woman who sits in the sideshow of Ringling Brothers ‘between Fat Lady and Armless Wonder’ and ‘affects white lace hats, woollen mittens and high laced shoes’ has a story which is far from mirth-provoking.
“She, previously a vigorous and good-looking young woman, has become the victim of a disease known as acromegaly,” he wrote in a letter to Time magazine.
Mary Ann spent her life working at the circus and she was reported to have earned a small fortune which enabled her to send her children back to England where they attended boarding schools.
She endured a lot, but she did it all for her children.
Mary Ann died at the age of 59 of natural causes. Her final wish was to be buried in her homeland, England, and her children fulfilled her wish. She is resting at the Ladywell and Brockley Cemetery in South London.
This woman’s sad, yet fascinating life story speaks of the mother’s love for her children more than anything else.
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