The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
Please SHARE this story to inspire others and spread awareness about this extraordinary journey.
Audience in awe as children’s Christmas recital turns into surprising shake dance
Oh, these tiny stars will make you fall in love with the holidays even more. You may think how you’ve seen lovely Christmas performances over the years, but once you get to see these adorable little humans, they will certainly become your number one holiday sensation.
The whole show they put on will make your heart and body dance along. Everyone is having so much fun that we wonder who these concerts are actually made for, the parents, or the kids themselves. This video is perfect for lifting up the holiday spirit and making you enthusiastic about everything it brings along.
We have the most adorable kids, a perfectly decorated stage, some nice costumes, iconic Christmas song, and it seems all this is the key to perfection.
It’s obvious from the footage that this performance took place some years ago, but thanks to the social media it went viral again. Maybe the students of the Saint Elizabeth Child care facility in Jersey City, New Jersey that were very little at that time will see themselves now when they are older and it will bring pleasant memories.
It’s so fun how they take the stage one by one, are lined next to each other, but are not really in a perfect sync, which makes them quite adorable. Moving back and forth in different rhythm but still with great enthusiasm, they are the cutest little dancers. It’s adorable how they wave their parents hi when they spot them among the crowd.
Audience in awe as children’s Christmas recital turns into surprising shake dance
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Oh, these tiny stars will make you fall in love with the holidays even more. You may think how you’ve seen lovely Christmas performances over the years, but once you get to see these adorable little humans, they will certainly become your number one holiday sensation.
The whole show they put on will make your heart and body dance along. Everyone is having so much fun that we wonder who these concerts are actually made for, the parents, or the kids themselves. This video is perfect for lifting up the holiday spirit and making you enthusiastic about everything it brings along.
We have the most adorable kids, a perfectly decorated stage, some nice costumes, iconic Christmas song, and it seems all this is the key to perfection.
It’s obvious from the footage that this performance took place some years ago, but thanks to the social media it went viral again. Maybe the students of the Saint Elizabeth Child care facility in Jersey City, New Jersey that were very little at that time will see themselves now when they are older and it will bring pleasant memories.
It’s so fun how they take the stage one by one, are lined next to each other, but are not really in a perfect sync, which makes them quite adorable. Moving back and forth in different rhythm but still with great enthusiasm, they are the cutest little dancers. It’s adorable how they wave their parents hi when they spot them among the crowd.
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Although they are only supposed to move along the melody, many of the kids can’t contain themselves from singing out loud. The all time favorite hit “Rockin’ Around the Christmas Tree” is the background song that makes the overall impression stronger.
In 1958, songwriter Johnny Marks wrote the iconic song for Brenda Lee when she was only a 10-year-old girl and whose vocal skills were already considered outstanding.
Some of his other hits are “Rudolph the Red-Nosed Reindeer” and “Holly Jolly Christmas.”
The song was a quick hit and its position as a Christmas classic is perhaps best cemented by the 1990 film Home Alone in which the main character uses it as the soundtrack to his fake Christmas party meant to scare away the burglars.
Seeing the beautiful and innocent kids holding hands and then waving their arms up in the air fills our hearts with joy. As they leave the stage, the proud parents praise them with loud applause.
Watch the performance in the video below.
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