Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Tattoo addict inks 95 percent of his body, reveals what he looked like just 5 years ago
Tattoos are just one of many ways to express one’s individuality. While some people go with a little tattoo, others go all out, decorating entire body parts.
Tristan Weigelt, a 26-year-old tattoo apprentice covered in extreme body art, made headlines after showing what he looked like prior to using his body as a canvas.
The before photos were astounding.
Weigelt’s journey to covering 95 percent of his body in tattoos began when he was 20.
“It’s kind of weird looking at myself without all the tattoos,” he told the Daily Star.
“But funnily enough I still feel exactly the same as before on the inside.”
Out of all the tattoos, he said the most painful were the ones he got on his face and head, comparing it to being scraped with a metal brush.
“It was six full day sessions taking between five and six hours and the pain was probably an eight out of 10.”
While many people get a tattoo with a special meaning in mind, Weigelt said there are no hidden messages or meanings behind his body art.
After five years, Weigelt has spent $50,000 on tattoos.
For those considering a tattoo, Weigelt says, “Get what you love and what makes sense to you. I see so many people worried about a certain tattoo fitting them or it not being their style. If you like it – then get it.”
Wow. What an incredible transformation!
Would you ever consider getting tattoos on your entire body? I’m not sure I would.
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