Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
A Note from the Delivery Guy Made Me Install Security Cameras around My House – I’ll Forever Be Grateful to Him
The delivery guy’s scribbled note sent me rushing to my backyard trash cans, where I discovered something chilling. His cryptic warning may have saved my family from a terrifying fate, but the danger was far from over.
I often order food delivery when I’m too tired to cook for my kids. Over time, we grew close to Ravi, the delivery guy in our area. He’d always chat with Kai and Isla, high-fiving them before leaving. But last Tuesday night was different.
A food delivery man saddling up on his motorcycle | Source: Pexels
When Ravi arrived, he seemed very nervous. Fidgety. He shoved the food into my hands and bolted back to his car without a word.
“What’s up with Ravi?” Kai asked, peering out the window.
I shrugged, watching Ravi’s tail lights disappear down the street. “No idea, buddy. Maybe he’s in a hurry.”
As I brought the food into the kitchen, still puzzled by Ravi’s behavior, I noticed something on the back of the bag. Scrawled in shaky handwriting was a message that made me forget about dinner entirely.
Helpings of fast food laid out on a table | Source: Pexels
“CHECK YOUR TRASH CAN”
I set the food down and turned to my kids. “Hey, why don’t you two go wash up? I’ll get everything ready.”
Once they were out of sight, I bolted to the backyard. The message kept repeating in my head as I approached our trash cans. My hands shook as I lifted the lid of the first one.
A brightly-colored trash can in a backyard | Source: Pexels
Nothing unusual. Just our regular garbage. I moved to the second can, dread building with each step. I threw open the lid and froze.
Inside, wrapped in an old, dirty blanket, was a collection of gloves and what looked like a few small tools. At the bottom sat a bottle without a label, filled with some kind of liquid.
“Mom? Are you okay?” Isla’s voice startled me.
I slammed the lid shut and spun around, forcing a smile. “Yeah, sweetie. Just… checking something. Go on inside, I’ll be right there.”
A woman closing a trash can in a backyard at night | Source: Midjourney
As soon as Isla was gone, I pulled out my phone and dialed the sheriff’s office.
“Sheriff’s Department, this is Leona speaking.”
“Leona, it’s Nora. I need you to come over right away. I found something concerning in my trash.”
“Slow down, Nora. What exactly did you find?”
I described the contents of the trash can, my voice barely above a whisper.
“Don’t touch anything,” Leona said, her tone serious. “I’m on my way. Stay inside with your kids until I get there.”
A police officer on a call in a precinct | Source: Midjourney
I hung up and headed back inside. Our neighborhood had recently experienced a string of break-ins, all with eerily similar methods. Chemicals used to weaken locks, meticulous clean-up of any evidence.
It hit me: my house was being set up for the next break-in.
“Mom, what’s going on?” Kai asked as I entered the kitchen. “You look scared.”
I forced another smile. “Everything’s fine, honey. Let’s eat dinner, okay?”
A woman setting dinner for children at a table | Source: Pexels
We’d barely started eating when there was a knock at the door. I jumped up, but was relieved when I saw Leona through the peephole.
“Kids, stay here and finish your dinner,” I said, stepping outside to talk to Leona.
She listened intently as I recounted finding the items and Ravi’s strange behavior.
“You did the right thing calling me,” Leona said, her eyes scanning the street. “I’ll take a look at what’s in your trash and get it to the lab. In the meantime, I strongly recommend you beef up your security. Also, we’ll patrol the house all night, so in case they re-tool and still try to break in, we’ll nab them red-handed.”
A police officer smiling | Source: Pexels
I nodded, already planning my next move. “I’ll call a security company first thing in the morning.”
Leona placed a reassuring hand on my shoulder. “Try to get some rest, Nora. We’ll figure this out.”
But sleep was the last thing on my mind that night. I spent hours researching security systems, jumping at every little sound outside. By morning, I was a jittery mess of caffeine and anxiety.
A woman working on a laptop computer at night | Source: Pexels
As soon as it hit 8 a.m., I called the first security company on my list. “Hi, I need cameras installed around my house. Today, if possible.”
“Ma’am, our earliest available slot is next week —”
“You don’t understand,” I cut in, my voice cracking. “I think someone’s planning to break into my home. I need those cameras now.”
There must’ve been something in my tone because the receptionist’s voice softened. “Let me see what I can do. Can you hold for a moment?”
A woman on a call in a work environment | Source: Pexels
After what felt like an eternity, she came back on the line. “We’ve had a cancellation. Our team can be there in two hours. Will that work?”
I nearly cried with relief. “Yes, thank you. Thank you so much.”
The next few hours were a blur. I called in sick to work, kept the kids home from school, and paced the house until the security team arrived.
A security camera installed on a wall | Source: Pexels
As they worked, installing cameras and explaining the system to me, I couldn’t shake the feeling of being watched. Every car that drove by, every person walking their dog, they all seemed suspicious now.
Just as the security team was finishing up, Leona’s patrol car pulled into my driveway. She got out, her face grim.
“Nora, can we talk inside?”
A parked police patrol vehicle | Source: Pexels
My stomach lurched as I led her into the house. “Kids, why don’t you go play in your rooms for a bit?”
Once they were out of earshot, Leona spoke. “The lab results came back on those items we found. The liquid in the bottle? It’s a powerful corrosive, often used to weaken locks.”
I sank onto the couch, my legs suddenly weak. “So it’s true. They were planning to break in.”
Leona nodded. “It looks that way. But Nora, you’ve done everything right. You’ve got cameras now, you’re aware of the threat. We’re increasing patrols in the area too.”
A policewoman discussing something in a living room | Source: Midjourney
“What about Ravi?” I asked. “Should I talk to him?”
“If you see him, yes. But be careful. We don’t know if he’s involved or just an observant bystander.”
As if on cue, I spotted Ravi pulling up to my neighbor’s house. “He’s here now,” I said, moving to the window.
Leona joined me. “Go talk to him. I’ll watch from here.”
I stepped outside, my pulse racing. Ravi was just getting back onto his bike when he saw me.
A delivery man astride a motorcycle | Source: Pexels
“Hey,” I called out, trying to keep my voice steady. “Got a minute?”
Ravi hesitated, then nodded. As he approached, I could see the tension in his shoulders.
“Look,” he said before I could speak, “I’m sorry about yesterday. I should’ve said something, but I was scared.”
“Scared of what?” I asked, though I had a pretty good idea.
A woman having a conversation with someone in a front yard | Source: Midjourney
Ravi glanced around nervously. “After I parked, I saw these guys messing with your trash. They looked not good, you know? I wanted to warn you, but I was afraid they might still be around.”
I was so relieved. “That’s why you left the note?”
He nodded. “Yeah. I’m sorry if I freaked you out. I just didn’t know what else to do.”
“Ravi,” I said, my voice thick with emotion. “You might have saved my family. Thank you.”
A profile view of a woman talking to someone unseen | Source: Midjourney
His shoulders relaxed a bit. “Really? You’re not mad?”
I shook my head. “Not at all. In fact, I owe you big time.”
As Ravi drove away, I felt grateful but also a little afraid. The threat wasn’t over, but at least now I knew we weren’t facing it alone.
Back inside, Leona was on her phone, talking in hushed tones. She hung up as I approached.
“We’ve got some leads based the description Ravi gave us ,” she said. “We’ll catch these guys, Nora. Just stay vigilant.”
A police officer talking on a mobile phone in a living room | Source: Midjourney
That night, after tucking Kai and Isla into bed, I sat in front of the new security monitors. The cameras showed empty streets and quiet yards, but I couldn’t shake the feeling that somewhere out there, someone was watching, waiting for their chance.
I thought about Ravi’s quick thinking, Leona’s dedication, and my own newfound strength. Whatever came next, we’d face it together. For now, all I could do was watch and wait, grateful for the unexpected allies who’d helped keep my family safe.
A woman looking aside thoughtfully | Source: Pexels
What would you have done? If you enjoyed this story, here’s another one for you about neighbors who installed a camera aimed at a woman’s garden, but she taught them a savage lesson without going to court.
This work is inspired by real events and people, but it has been fictionalized for creative purposes. Names, characters, and details have been changed to protect privacy and enhance the narrative. Any resemblance to actual persons, living or dead, or actual events is purely coincidental and not intended by the author.
The author and publisher make no claims to the accuracy of events or the portrayal of characters and are not liable for any misinterpretation. This story is provided “as is,” and any opinions expressed are those of the characters and do not reflect the views of the author or publisher.
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